What is Normal Anyway?

“It must be hard to have your first child have so many allergies. I wonder what it’s like have the normal one be your second child since you don’t really know what normal is, do you…”

She sort of stated with some rising intonation as if asking a question in there…but not quite. Hmm, I thought to myself for a second before responding, “No way! When you have a kid with as many allergies as J-1 does, things like my second kid (J-2) eating yogurt without profusely vomiting in 30 sec. and being covered in hives is somehow surreal to us! We get joy every time J-2 tries a new food and doesn’t react.” I guess this goes to prove her point that, yeah, I mean we really don’t know what normal is, do we?

We are not the family chowing down on pizza on a Friday night. Or the one eating Saturday breakfast consisting of pancakes, eggs, and bacon (although we do certainly enjoy our share of bacon in our family). It’s interesting what we face in life and how that shifts and then re-shapes our perspective. Having a child with allergies has truly transformed my own personal view on food and what we put into our bodies, hardships people face, taking the little things for granted (like going to a restaurant or eating at a friends home), enjoying the simple things (like when our son passed the pistachio challenge and we could add pistachios to our repertoire of household foods). Allergies are rough, don’t get me started on that….because it’s the reason this blog exists.

BUT…having a child with allergies has given me perspective on the hardships other people face on a daily, hourly basis. It has brought me a sweet joy to see my son eat healthy and to learn what foods his body CAN tolerate. It has given me a greater joy and appreciation when my husband and I get to sneak out on a date night, just the two of us and gorge ourselves on what we refer to as “allergens” now:) Which by the way, we often wake up the next day saying, “I don’t feel that great”. That’s another topic though on what “bad” foods do to our bodies and maybe a way to re-think normal ourselves.

Yes, we may not be your typical “family” with “normal” kids, but I have to say, we are learning the true essence of having compassion for others going through any challenge in life. As my children grow, they are going to be forced into an empathetic way of interacting with others who have something about them that makes them “different,” that perhaps makes them “ stand out” from the rest. I can only hope we teach them to be okay with the those differences and to be the kind of friends to others who are kind, who care. Heck, we don’t need to be normal over here in this household, we want to be extra-normal…or rather, extraordinary as we live our lives together:)

Our Kid Has Food Allergies! What to Do…

Welcome to our blog!

If you haven’t figure it out yet, we are passionate about food allergies…because we have to be. Our first son (J-1), has multiple food allergies, and because of this, as a parent you are forced to both understand and help cure their food allergies. Here is a little of our back story to get to know us and our journey…

We had a healthy 3-month old baby boy that developed severe Eczema (Atopic Dermatitis), especially on his face. Looked something like this:

Dr. G (our pediatrician) prescribed some pretty heavy (steroids- Triamcinolone and the oil textured 2.5% hydrocortisone) creams and told us to use them frequently until the eczema went away. We asked him what causes eczema, and he basically tells us that it is genetic and that we should just use the creams and J-1 will get over it. My wife specifically asks about food and her breast milk (at this time he was only having breastmilk), but the doctor says that food doesn’t cause Eczema, especially not through breastmilk. We go home with creams and high hopes for getting over this.

At home, my wife googles some stuff (I know, you are all thinking that we are the idiots that use Dr. Google for everything, well sometimes it’s needed). She sees that Eczema can be linked to something called the Atopic March (Atopic Dermatitis-Food Allergy-Environemtnal Allergy-Asthma) and my wife has eczema which she thinks is exacerbated by eating gluten (she has Hashimotos which she believes has something to do with all of this). She immediately does some searches for food allergist/immunologist(s) in our area and she finds none(we liven a rural area). We then find high recommendations for an allergist that is 2 hours away by her parents house (thinking that we can go when we visit). We schedule an appointment and wait. The appointment is a couple weeks later and during those couple weeks, the creams help and get rid of the Eczema, but the minute we would stop…it always came back. Worse and worse.

So, we go to see Dr. P (if you read the blog you will get to know Dr. P even better. He’s pretty good). He states that about 40-60% of eczema is food related and can be prevented by cutting out the food. We proceed to tell Dr. P about our experience so far and he decides to administer the skin-prick test. Looked something like this, but 40 dots:

We did the entire panel (40 pricks) and found out that he was allergic to 3 things that day:

EGG

ALMOND

SESAME

So, we are thankful and sitting in the doctors office plotting how to cut out these foods from my wife’s diet, when the doctor comes back in and hands us an…EPIPEN.

At that point it GOT REAL for us and we realized the gravity of what he was telling us. At the time, we didn’t have some cosmic revelation about how our lives would be changed forever, but we realized that this was the beginning of a journey that would require us to be really involved parents in a way that is distinct. Parents are always concerned about their children, but food allergy parents have a tough time because they are asked to start to see food (usually a family and friend experience that is fun and inviting) as a stressful time, especially around other young children and extended family. This blog tells the rest of our story, but fast forward to today and…

Where are we today?

Well, we have 2 boys now; J-1 and J-2, and J-1 has multiple allergies at the age of 2. The total list includes:

Dairy

Eggs

(He can have Baked Egg because he passed the challenge)

Wheat

Tree Nuts

(He can have Pistachios only- again, he passed the challenge)

Peanuts

Soy

(seems to be over this)

Sesame

Our second son, J-2 is only 5 months old…but so far he has 1 Allergy:

EGG

We (my wife and I) write this blog often times to feels a sense of camaraderie as we do not have any immediate friends whose child has a dangerous and confirmed group of food allergies. We understand that it is on the rise, but sometimes it is nice to have little community to discuss our successes and failures. We write to hear from others their stories and hopefully not feel alone in this struggle. Feel free to join us on this journey and thanks for stopping by.